Privacy Policy

The Acoustic Neuroma Association of Canada (ANAC) is committed to protecting the privacy of personal information collected from its members, volunteers, donors, contractors, subject matter experts and all users of its services and to ensuring such information is used for only appropriate purposes.

ANAC adheres to the compliance of the laws and regulations under privacy laws in Canada including the Personal Information Protection and Electronic Documents Act (PIPEDA).

ANAC values your privacy and wants to be transparent about the information we collect about you and your rights to control that information. This policy explains how ANAC will treat your personal information - how we collect and use it when you submit an application, make a donation and use the ANAC website, mobile application, programs, and any other service.

We will never exchange or sell any of your personal information to anyone. We will only provide your personal information to third parties who are needed to provide our uses or services described below under “Use of Information” provided they undertake to comply with Canada’s privacy standards (e.g., web developer).  ANAC’s Privacy Policy applies to any information we collect or receive from any source.


A. Personal Information Collected

Personal information we collect includes but is not limited to: your name, username, address ( post and email) telephone number and certain legally protected information such as information about  your acoustic neuroma and inferences that can be drawn from that information.  We will ensure that your Personal Information is kept as accurate, complete and up-to-date as possible based on information provided to us by you.


B. Use of Information

ANAC commits that the information obtained will be used only for:

  • Providing ANAC-related services to members and donors
  • Completing a transaction to join or renew an ANAC membership, make a donation or purchase a product offered by ANAC
  • Authenticating you when you sign in to your account
  • Advising members and non-members about mission-related products or services such as notices of meetings, programs and events
  • Distributing newsletters
  • Contacting individuals for fundraising purposes and issuing tax receipts
  • Presenting non-ANAC content and advertising that is customized to ANAC interests
  • Responding to inquiries



  1. ANAC will utilize, disclose or retain your Personal Information for as long as necessary to fulfil the purposes for which it was collected and as permitted or required by law, or until your consent is withdrawn, or whichever is withdrawn first.
  2. Providing us with your personal information is voluntary except when processing a financial transaction, to maintain records of ANAC or as required or permitted by applicable law.
  3. Your consent may be withdrawn at anytime. However, doing so may result in ANAC being unable to provide you with services.
  4. Errors may occur from time to time. If we become aware that Personal Information is inaccurate, incomplete or out of date, we will revise the Personal Information.
  5. ANAC only will transfer your name, contact information (email/ telephone) to ANAC’s Group Support Chapter Leaders / volunteers for the purpose of organising support group meetings.


C. Communication and Canada’s Anti-Spam Legislation

Canada’s Anti- Spam Legislation (CASL) restricts the ability of organizations to send commercial electronic messages without the consent of the recipient. Activities of an association or charity such as ANAC, including collecting membership fees and donations, organizing activities such as chapter group events, providing educational opportunities and mailing out newsletters, are not considered commercial activities as they pertain to the objects of ANAC.



  1. If you do not wish to receive further emails, newsletters or invitations to events, you may unsubscribe or contact our Executive Director and ask that we not contact you for these purposes.


D. Security of Information

ANAC endeavours to maintain appropriate safeguards and adequate procedural and technical security with respect to our organization and information storage so as to prevent any unauthorized access, disclosure, copying, use, or modification of personal information. This also applies to our disposal or destruction of Personal Information. Safeguards include securing physical documents and technological measures by way of secure access and encryption.

We also take measures to ensure the integrity of this information is maintained and to prevent its being lost, stolen or destroyed without authorization. Tools are used and procedures are implemented to prevent a “breach of security” which is defined as the loss of, unauthorized access to or unauthorized disclosure of personal information and may result from a breach of an organization’s security safeguards or from a failure to establish and adequately maintain those safeguards.

Also, to ensure the integrity and privacy of the personal and credit card information when you make an online transaction, ANAC uses Stripe which is a secure third-party payment gateway that employs the industry standard with the highest level of 128-bit encryption. All information collected within a secure page is encrypted while being transmitted. The server is protected by a firewall that is regularly updated when new patches and fixes are released.



  1. Individuals are authorized to access personal information based only on their need to deal with the information for the reason(s) for which it was obtained.
  2. ANAC will notify you and the appropriate Privacy Commissioner(s) if a breach of security occurs involving your Personal Information under our control.


E. ANAC Website and Site Traffic Monitoring

Visitors to ANAC’s website are not required to reveal any individually identifiable information, nor is any information collected passively by electronic or other means. Personal information is only collected when an individual voluntarily submits information when registering, for example, applying for or renewing a membership online, meeting registration or making a donation.

ANAC uses Google Analytics and uses data only to ensure relevancy of information and that the ANAC website is dynamic.



  1. When browsing through our website, reading pages, or downloading information, ANAC will neither link IP addresses, gather or store any personal information.
  2. ANAC recommends  a review of how Google Analytics collects and processes data which is set out in “How Google uses data when you use our partners' sites or apps”, See
  3. Members and donors are responsible to protect user id and password information. If this information is disclosed, the privacy of your information cannot be assured.


F. Links to Websites

The ANAC website may contain links to other websites or Internet resources, belonging to our sponsors, partners or collaborators. When you click on one of those links you are contacting another website or Internet resource that may collect information about you or through cookies or other technologies.

Links to other websites are not endorsements or approvals of such sites, the third parties named, or their products or services. ANAC assumes no liability for any such information or computer viruses in software accessed from any such site.

The display of trademarks, trade names, or service marks on the ANAC website does not authorize or license any use or exploitation of such marks and names by any person. Unauthorized use or exploitation of such trademarks and trade names is strictly prohibited and will be prosecuted. The ANAC website is subject to the copyright laws of Canada and International Treaty provisions. Unauthorized downloading, retransmission, storage in any form, copying, redistribution, reproduction, broadcast or publication for any purpose is strictly prohibited. Nothing contained in this website may be reproduced without the express prior written permission of ANAC.



  1. ANAC’s Privacy Policy does not extend to third-party websites.
  2. ANAC is not responsible for the content of, or the privacy practices employed by, third-party websites.


G. Data Processors in Other Counties

In order to provide you with services, ANAC may use service providers, data processors and other third parties to perform services on our behalf.  These third parties may store, process and transfer personal information on servers located outside of Canada in jurisdictions whose data protection laws may differ from those of Canada, which may include, for example, the United States of America.

Therefore, as a result, personal information may be subject to access requests from governments, courts, or law enforcement in those jurisdictions according to the laws in those jurisdictions. ANAC will use reasonable efforts to ensure that appropriate protections are in place that are equivalent to those that apply in Canada.


Date Revised and Approved: May 27,2021